You Matter Policy Collective is the policy and civic advocacy initiative of You Matter Patient Advocacy Group, dedicated to ensuring that the voices of individuals living with MASLD, MASH, NASH, fatty liver disease, and other liver-related conditions are represented in healthcare policy discussions. Real change in healthcare happens when patients and families participate in shaping the policies that affect access to care, treatment, prevention, and research.
Through the Policy Collective, we work to educate patients about important federal legislation, connect advocates with opportunities to engage lawmakers, and amplify the real experiences of people living with liver disease. Advocacy is one of the most powerful tools patients have to improve healthcare systems and expand access to lifesaving treatments.
Why Patient Advocacy Matters
Policies like these move forward when patients, caregivers, and advocates speak up. Sharing your experience with liver disease can help lawmakers understand the real-world impact of delayed diagnosis, limited access to specialists, and barriers to treatment. When patients engage in advocacy, it helps shape legislation that improves care for future generations.
One of the most important steps you can take is to connect with your local representatives and let them know why liver health policies matter to you.
You can find and contact your representatives here:
🇺🇸 Find Your Members of Congress:
https://www.congress.gov/members/find-your-member
Coming Soon: Advocacy Toolkit
The You Matter Policy Collective Advocacy Toolkit will provide practical tools to help patients confidently engage in policy advocacy. The toolkit will include:
- Templates for contacting your local representatives
- Sample advocacy emails and follow-up messages
- Guidance on requesting and preparing for meetings with lawmakers
- Tips for sharing your story effectively
- Templates for post-meeting follow-ups
- Guidance on inviting representatives to liver disease screenings and awareness events
By equipping patients with advocacy tools and knowledge, the You Matter Policy Collective aims to ensure that liver disease patients are not only heard—but actively shaping the future of liver health policy.